Posted by: jennnigan | December 2, 2010

Two years

Two years ago, I was in hospital. It was five days after surgery to remove a pituitary microadenoma, and I had a lumbar drain in because I’d developed a CSF leak after surgery. I had a stroke that night and threw up in the CT scanner.

As I write this, two years later, I am sitting on a couch in Southampton, UK, and the view outside the window is snow. It’s very pretty, and it’s also very cold here. Needless to say, this is a completely different place (both geographically and lifewise) to where I thought I’d be two years ago.

Posted by: jennnigan | November 9, 2010

Weird

Okay, I know I said yesterday that I was looking forward to not taking any pills, but today, on the first day this is happening in ages, it just feels weird. My morning feels oddly incomplete.

Posted by: jennnigan | November 8, 2010

No more drugs!

Well, that’s a slight lie – hormones are still being released into my body every day via the Mirena, but in terms of pills that I have to physically swallow every day, I’m done! Today marks four weeks since leaving Arusha, which is how long I was meant to be still taking Doxycycline (anti-malarials) for.

This means that tomorrow will be the first day since the first half of 2007 that I won’t be taking a pill of some sort. The pills have varied – the contraceptive pill, iron tablets, calcium tablets, vitamin D tablets, hydrocortisone, anti-malarials, thyroid drugs, blood pressure drugs, blood thinners, and whatever else that was in the cocktail I was on in and straight out of hospital.

It’s pretty exciting!

Posted by: jennnigan | October 26, 2010

Checking up

My endo called me last night, to tell me that my bloods so far are normal. I’m seeing him next Thursday to get all the other results (handed in 24 hours worth of pee this morning).

I’ve also been to the optometrist for a check-up, and have an appointment next week with my dentist for a check-up and clean. It kind of feels as though I’m putting my body in for service, only this kind of servicing takes me all over Sydney and has to be done over five different days. And I’m not a hundred per cent sure on the maths, but I think my body is more expensive than my car. Worth it, though!

Posted by: jennnigan | October 21, 2010

Public education of Cushing’s Disease

Or “My, what a lot of pee you have!”

I’ve been back in Sydney for a week now. I left Tanzania earlier than planned because I was offered a job in the UK (research assistant in geography), and I have a few things to do at home before I leave again for an extended period of time.

This morning, I went to see my endocrinologist. It was a good appointment, and it does feel like meeting up with a friend who also happens to check up on my cortisol levels annually.

After the appointment, I went to do the blood tests (first blood tests in eight months!) and get the collection container for the 24 hour urine free cortisol test. For those of you who don’t know, the container is a giant plastic container that reminds me a bit of a jerry can. They give that to you, plus a smaller plastic container (like a takeaway soup container), in a big clear plastic bag. I’m not sure why they give it to you in a clear plastic bag – perhaps they think I want to advertise the fact that I’m going to be peeing into it shortly?

On the train on the way home, a guy commented that it must be for a lot of pee. So I said yes, it is, for 24 hours’ worth. I explained to him about Cushing’s Disease, and thought that it was impressive that he knew it was for pee. I didn’t think it was *that* obvious.

In other news, I’ve also gone back to my gym – to cycle classes, Pilates, and personal training sessions. I love it!

Posted by: jennnigan | October 10, 2010

You will always be a part of me

I’m going to be leaving Arusha tomorrow. I will be flying home much earlier than expected, and then, if all goes according to plan, I will head off to the UK for a new job.

I will only have a few weeks in Sydney, and in those few weeks, I have a rather long real-life To Do list. I will go to my endocrinologist for the 24 hour urine free cortisol test and morning cortisol blood test. I will go to my gynaecologist for a pap smear. I will go to my GP for a check up. I will take a letter from one of my doctors to the RTA (Roads and Traffic Authority) saying I’m fit to drive.

Even though it’s been almost two years since the Cushing’s diagnosis (Tuesday will be the two year anniversary of my appointment with my endo), and it’s been almost two years since the stroke, they will forever be a part of my life that needs to be checked up on.

I’m not complaining, though. I’m happy just to still be alive, almost two years later.

Posted by: jennnigan | September 10, 2010

A million scars

I was reading another one of those trashy women’s fashion magazines and getting angry. Again. I really should stop reading them, but I can’t help it – sometimes I just like to feel angry.

There were numerous reasons as to why I was getting angry at this particular one, but one of the main ones were the cosmetic surgery ads that littered the magazine. I have ranted about this before but now I’m angry again.

Seriously, magazines. Stop trying to make women feel bad. Stop sending the message that undergoing traumatic surgery is the only way a person can feel good about themselves. It’s not.

I have a million scars over my body. Well, maybe not a million (I haven’t done a proper count), but some days it feels like it. They all tell a story, though.

The biggest ones are the bright red stretch marks across my hips. The stretch marks are also on my boobs, inner thighs, calves, and near my armpits. These are the battle scars from Cushing’s Disease. When they first appeared, I was quite upset. I thought that after surgery and after the pituitary tumour was removed, the stretch marks would magically disappear.

They didn’t, and they have now been there for about two years and three months. They have faded, but they are still noticeably there. I don’t remember what I looked like without them, but to be honest, I think that if they disappeared, I would miss them. They remind me every day that I am alive, and that life used to be much worse. They remind me that not having Cushing’s is a wonderful thing.

I have a few other scars. I have them on my knees and elbow, which is another cool story – they came from falling off my bike in Vietnam. They remind me of the two weeks I spent with some amazing people, on a bike, in a beautiful country. That trip gave me the travel bug, for which I will be forever grateful.

There are some scars on my bum and upper thighs – these are from the bed bug bites I got in Zanzibar, Tanzania. The bed bugs were horrendous, but Zanzibar was spectacular. I had the bites with me on the trip into the Ngorongoro Crater and the Serengeti National Park, and those were incredible, even with the constant itching. As much as I hate the bed bugs, I remember the good experiences I had with them more.

And finally, there are mosquito bite marks EVERYWHERE. Even if I don’t scratch the bites, they leave a mark. I do my best to avoid getting them, but mozzies in Arusha, Tanzania are an ever pervasive force. Every day I discover a new bite that was not there the previous day. I wear long trousers, long sleeved tops, shoes and socks. I sleep in a mosquito net, and I wear DEET-strength insect repellent. And still, the little buggers get me. But even though they are a very irritating part of life here, there are many more good things about life here, and there’s nowhere else I’d rather be right now.

So no, my body is not perfect. It is far from it. But I still think it is amazing. My brain works, I have full mobility, my pituitary gland works, my adrenal glands work, I don’t have a terrible disease like HIV/AIDs, and I am generally reasonably healthy. That’s all I need. That’s all anyone should need. Be happy you’re alive, and be happy you’re healthy. You don’t need a bum lift, or boob enlargements, or liposuction, or to get rid of your wrinkles. That’s just a lie that the cosmetic surgeons and beauty magazines cooked up. Don’t believe them.

Posted by: jennnigan | August 5, 2010

A moment of honesty

I don’t really know what to do with this blog/website now. It is primarily about Cushing’s, stroke and fundraising for the National Stroke Foundation. All of that is basically over now (it’s been a year and eight months since the stroke; time has flown!), but life continues. I am having an amazing time in Arusha, but that seems like it should be a different blog. Or is everything that is happening now just an example of life after stroke and should continue to go in here? Hmm…

Posted by: jennnigan | June 30, 2010

A new year and a new charity

I’m in Arusha, Tanzania right now. Arusha is a fairly big city, right at the base of the Serengeti National Park and Mt Kilimanjaro. I’m volunteering at the Umoja Centre and will be here at least until the end of the year.

The Centre provides free education (English, IT and Key Skills) to young disadvantaged Tanzanians. I love being here because I can see every day the results of what we are doing. I’m in the office, helping out with research, fundraising and writing government applications. I’m running a newspaper club and teaching the students how to put together their own newspaper, the Umoja Journalist.

I’m having a fantastic time here, and it’s a bit hard to imagine how different life is now compared with a year and a half ago. On the one-and-a-half year anniversary of the stroke, I was in the Serengeti National Park, on game drives, camping, and marvelling at how everything turned out.

And now, a lot of the hard work of last year with fundraising is continuing, and I’ve discovered that it’s a lot harder to do fundraising in Australia when you aren’t actually in Australia.

Posted by: jennnigan | April 14, 2010

In between adventures

I arrived in Sydney two days ago after five weeks in south east Asia. I leave again on Friday for Africa, where I’ll be for the rest of the year. I’m spending these four days at home uploading photos, seeing friends, and going to the gym. A nice little break to appreciate Australian accents, being a local and sleeping in my own bed.

The cycle through Vietnam was amazing. There was a group of six of us (two had fundraised for the National Stroke Foundation, and the other four had fundraised for Parkinson’s Victoria). We had a great Vietnamese guide who spoke excellent English and knew a lot about the country, and was very accommodating and kind. The people I cycled with were all fantastic, and by the time we left, I felt as though I made a new group of friends, which I didn’t really expect at all.

And the cycle! The country! It was amazing. It was fantastic to cycle through the back lanes and see rice paddies and rivers, and have locals wave and shout “Hello!” wherever we went. Cycling is truly a great way to see the country. Oh, and the food was great too.

After the cycle, I spent a week in Cambodia, in Phom Penh and Siem Reap, where I learnt a lot about its depressing history, and saw a lot of temples.

Nex stop after that was Thailand, and in the two weeks I was there, I went to Bangkok, Chiang Mai and Chiang Rai. It’s a great country, with beautiful people and fantastic food.

I took about 3500 photos, and some of them are up on my Flickr page.

Vietnam

Cambodia

Bangkok

Chiang Mai

Chiang Rai

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